Monthly Archives: January 2014

A poem about Sjogren’s Syndrome (by me).

I think I’ve tried everything
Reading and gymming,
Meditating, swimming.
Pep talks and dressing-downs,
Smiles despite deep-down frowns.
Chocolate then diet,
Don’t want to die yet.
Doctors and pills,
Physios with pins.
Positive mental attitude,
For what I have, gratitude.
Lying in bed,
Shopping ‘til I’m in the red.
Nothing’s worked yet,
But my job’s under threat.
What can I do?
It’s making me blue.
Fingertips and toes,
Nothing that shows.
Look ‘normal’ on the outside,
From people I’ve shied.
I’m scared of their germs,
Their “When will you learn?”s.
Eyes flicking,
Tongues clicking.
Not even thirty,
No longer flirty.
Fat, limpy,
Pathetic, wimpy.
They don’t know how it feels,
The shit life deals.
The never knowing,
When pain will come flowing.
“It’s just dry eyes”,
Said one.
Tell my lungs and kidneys that,
You Pratt.
But I won’t give up,
I’ll pee in those cups.
I’ll give pints of blood,
Let them hear my heart thud.
No grins,
I’ll do anything.

Vic x


2014: What will your year bring?

Yes, yes, I know it’s now the fourth of January and some people have already broken some of their resolutions.

Thanks to most of the participants that took part in my 2013 Reviews series, I realised that many people have recognised the futility in making New Year’s resolutions.

However, I prefer to think more in terms of goals and achievements than resolutions. In my experience, many of the promises we make to ourselves at the beginning of each year are negative and therefore seem almost impossible to achieve, setting the person up for a fall.

The question I’ve asked myself the last two years is: ‘Where would I like to be in 12 months?’ At the start of 2013, I decided I wanted to be a regular user of my gym and, although it hasn’t been easy, I am in a far fitter position than I was a year ago. You don’t need to share these aspirations with anyone if you don’t want to but I think it’s helpful to keep them in mind throughout the year, not just in January.

So: where do you want to be this time next year?

Vic x